Monday, June 29, 2009
Respite, Redondo and Crumb Cake
I spent the weekend in nice cool Redondo and Corey and I catalogued and organized all the DVD's here. (He has so many we couldn't find anything and they were all over.) We had fun mostly doing nothing.
Looking forward to another peaceful week in which nothing reminds me or anyone else that I have breast cancer and then my family joins us in Redondo beginning Thursday to celebrate the 4th. Until then I am working on my gluten free cake and bread recipes so I can make something special for Courtney. Here is a recipe for a gluten free cinnamon crumb cake that I have nailed (if I do say so myself).
Gluten Free Cinnamon Crumb Cake
Batter:
2/3 cup milk ( room temp)
1 tablespoon yeast
1/4 cup sugar
2 tablespoons butter or margarine
1 egg
1/4 cup canola oil
1/2 cup potato starch
1 cup corn starch
1/4 teaspoon baking soda
2 1/2 teaspoons xantham gum
2 teaspoons baking powder
1/2 teaspoon salt
1 teaspoon vanilla extract
Cinnamon Crumb Topping:
1/2 cup chopped nuts ( walnuts or pecans)
1 teaspoon cinnamon
1/2 cup brown sugar
Icing Ingredients:
1/2 cup powdered sugar
3/4 teaspoon vanilla extract
2 tablespoons milk - enough to make icing easy to drizzle
Batter:
Add yeast to milk - stir until dissolve. Cream butter and sugar together. Pour yeast/milk mixture into sugar and add the rest of the ingredients. Stir together until blended then pour into buttered pan ( about 8 X8 or 9X9). Cover with plastic wrap and let sit at room temperature for about 1 hours.
Mix topping ingredients together and sprinkle over the top of the batter. Bake uncovered for 20 minutes at 375. Cool for 10 minutes. While cake is cooling mix together icing ingredients and after 10 minutes drizzle the icing over the top of the cake.
Saturday, June 20, 2009
One More Reason to Eradicate Breast Cancer
Friday, June 19, 2009
On the Job Training
Adults with Cystic Fibrosis lead dual lives. On the one hand, they live with the constant threat of becoming ill even as they practice a regime of medications and airway clearance that is taxing and tiring. On the other hand, it gets old being sick, it gets boring talking about it and it gets irritating to have other people telling you what you should be doing. The worst part is when other people cry for or about you. I am done crying about having breast cancer and am ready to live with the diagnosis and the treatment.
Yet, despite having CF, many of my patients have a calm, brave spirit that does not give into the disease but accepts the reality and navigates through life with this strange companion. They have learned from the experience of having CF but it does not define them. These incredible people inspire me and provide unknowing mentorship for my life with cancer. That is a blessing that I am sure many others with cancer do not have! On the job training is a benefit of employment in a job that I love.
Kim Peet gave me a poetry book with this interesting poem written by a cancer survivor:
Thursday, June 18, 2009
Clear Margins - Yippee! On to Radiation.
There was another radiation oncologist working with Dr. Kuske today named Dr. Chowdry. He came from Alberta, Canada to learn more about partial breast radiation. Both the docs were very impress with my surgical site. Dr. Kuske said, " You don't know how many surgeons hack off 1/3 of the breast to get the same size area. We have seen several concave breasts this morning already with actual cancer sites the same size as yours. " I am really pleased with the results myself - I still think Dr. O'Neill is amazing!
Karise gave Courtney, Ali and I each a pink wish necklace. They are delicate and beautiful. The idea is that you wear the necklace until the string breaks and then your wish will come true. We tried them on and rushed into the mirror to look at them. Here is a picture of the three of us with our wish charms.
Wednesday, June 17, 2009
Fortunate Lives
I am rereading Dead until Dark and watching the first season of the HBO series based on the Sookie novels, True Blood. So far I like the books better but I am an Eric fan and the HBO Eric is pretty cute.
I found this poem that my daughter, Ali, wrote in high school. I thought I would share.
Fortunate Lives
by Ali Overgaard
Appearances are deceiving
For the windows of the mansion on the hill
Appear to sparkle in the evening sun
Yet inside, no children play
No laughter rings
No lovers dream or whisper
Secret fears.
These jewels are worn
Unseen in the village house
Where the light shines
Not for those outside, but
Warms those who come within.
No one is happy who does not think himself so.
Monday, June 15, 2009
All about Friday.
A lot of time in the waiting room allows for family bonding and contemplation of the events to come!
I was worried about them marking the correct clip because by now I have several in each breast now but Dr. Nino showed me that each clip has a different letter on it. He then cleaned and numbed the area and placed the guide wire in a matter of minutes. A follow up film showed that he hit the right spot on the first time and I was done. The procedure is relatively painless, the numbing stings quite a bit but the sensation only lasts about 5 - 10 seconds.
We then went back to the same day surgery waiting room until after 12:30pm when they finally called me in to prep me for surgery. Corey and Ali stayed in the waiting room. By now they were beginning to make a few friends with other family members waiting. In between visiting with their new friends, our older daughter, Courtney, and my sister, Faith, would call to see what was going on. All of this activity kept them very busy. The two of them came back into the pre-op area after I was in my lavender gown and had my IV started. The pre-op nurse, Kim was not only a Stephanie Plum fan but also excellent at starting IV's.
Kim started my IV but did not mention if she prefers Joe or Ranger for Stephanie Plum.
Corey and Ali took some more pictures to pass the time.
At a little after 2 pm, Dr. O'Neill came back and we met the anesthesiologist, Dr. Brennan Watkins.
Dr. O'Neill and myself. I think she is the best breast surgeon in Arizona and I am glad she is on my team!
Shortly after that I had some Versed through my IV and went back in the surgical suite, I did not wake up until after 5 pm. Dr. O'Neill checked on me twice in post op and made sure I knew that the sentinel node was clear, the other nodes were enlarged but we had decided not to touch them if the sentinel node was clear and will follow them later.
The area removed was a little larger than a golf ball and then she shaved a bit more tissue all around the site. Although my whole breast is very, very bruised, the pain is quite tolerable. The lymph node site is a second incision & stings more than the breast incision. Sometimes I getting shooting pains into my collar bone but the prescription pain medication, Toradol and Tylenol taken in between works pretty well. My lymph node site is continually leaking a clear fluid which I guess is lymph fluid but the site on the breast itself is clean and dry.
On Wednesday, I follow up with Dr. O'Neill and she will let me know if the margins of the surgical area were cancer free. If they do have any cancer cells, I will need a second surgery next week but I feel pretty optimistic that this phase is done!
Sunday, June 14, 2009
The Sister Study - Breast Cancer Research
Follow the Progress at:
Thursday, June 11, 2009
Second Opinion & the Big Dilemma
I was glad to get this because although originally it was thought that I have DCIS (ductal cell cancer in situ - which means cancer in the breast duct that has not spread to surrounding tissues), I have had several indications that there is cancer somewhere else. Between the MRIs and the xrays that show a suspicious lymph node and several "hotspots" it appears that there could be cancer somewhere else. But, three biopsies, multiple MRIs, mammograms and multiple tests have not turned up any more cancer. The only thing that has turned up is that there are 10 spots of cancer near the original site not the five first seen. All of the spots are high grade so they are fast growing. The biggest worry is the suspicious axillary lymph node which is on the right side. No one can tell if that is the sentinel node (the one that leads away from the duct with the cancer) or another node.
Our current plan is to take the area with the known cancer, take 2 centimeters clearance around that whole area and shave the edges a bit more. At the same time, dye will be injected to lead back to the sentinel node which will then be tested for cancer cells. If the node is negative for cancer, Dr. O'Neill will close up without testing any more nodes. If the node is positive then she will take the next nearest node, test that for cancer and do that up to four nodes. If the fourth node is positive then Dr. O'Neill will remove the whole string of nodes. After the surgery we can check via MRI to see if the "bad" node is gone or not.
The second opinion team offered one alternative. They suggested checking the suspicious node using ultrasound and then aspirating it and doing a pathology on it to see if it has cancer. This seems like a good plan except it would entail waiting on the surgery. I have been spent the last month being diagnosed and want to get the known cancer out of me so I can finish the treatment and get back to work and my life.
So... tomorrow around 9:00 am... they will place a guide wire for the surgeon, I think via one of those not so great MRIs. At 11:00am I will have surgery and hopefully go home in the early evening!
Positive energy and prayers accepted! Peace.
Wednesday, June 10, 2009
One Month Anniversary
Dr. Kuske's gut feeling is that my cancer is still in situ which means it has not invaded the surrounding cells and remains inside the milk duct. This has been the question that has plagued the doctors since I was diagnosed. Some indicators seemed to show that in my case the cancer had invaded other cells - when this happens it is called invasive cancer. Each indicator has turned out to be negative in my case. The last test will be the nearest axillary lymph nodes to the cancer sites which will be tested during surgery and I should have final results of that next Wednesday.
If I have invasive cancer then I need to have more extensive chemotherapy along with the radiation and medications to block the estrogen and progesterone. If the cancer remains in situ then I will have radiation and medications to block the estrogen and progesterone only.
Trivia: in situ is from the Latin term which means in it's place.
Saturday, June 6, 2009
The Winds of Fate
Friday, June 5, 2009
Almost Ready to Start Fighting Cancer Again.
Last week really left me feeling beaten up. I was bruised and exhausted but yesterday I felt like I could have gone to work. I miss my friends at work and my patients. (Hope that Chelle, Barb, Nat, Monica and the others are keeping my desk warm.) Instead, I walked down to the farmer's market and bought some fruits and veggies and then had a tamale from a little stand there for lunch. I ate my tamale while looking out at the ocean and wearing a jacket which was some recompense for not being at work, after all it's 105 degrees there. .
The problem is that just when you start to feel like you are yourself again, it's time to get back to fighting cancer.
Corey is working half a day today and then I hope to feel good enough to ride the bikes for a bit along the beach. One day I will write about how great Corey is and has been but honestly right now it makes me teary just to think about it.
I cooked the last three nights which I love to do but hadn't really felt like doing for a while: Steaks on Tuesday, Spaghetti with black and green olives on Wednesday and Scallop Helper on Thursday (one of my signature dishes!)
Monday, I head back to Phoenix to my usual two doctors a day routine except for Thursday when I am getting my hair done so I look cute on the operating table. Corey is coming in next Thursday night. Wish I could stay with him but Ali put the cats on a diet so I think they need me more right now.
Have a good weekend!
Thursday, June 4, 2009
Breast Cancer Primer
Wednesday, June 3, 2009
More Six Word Stories ... What's Yours?
Vitamin D, Breast Cancer & Me
Laboratory studies have shown that vitamin D stops cancer cells from dividing and actually makes the cancer cells die out. Previous research has shown that enough vitamin D and exposure to sunlight has been shown to reduce the risk of developing breast cancer. Vitamin D is made in several ways. The body produces its own vitamin D in the skin when it is exposed to sunlight. Vitamin D is also found in certain foods, including eggs and fatty fish.
What I did not know is that almost everyone diagnosed with breast cancer has a low serum vitamin D level. And researchers do not yet know is if the low D level is a cause or a symptom of breast cancer.
Dr. Chistakos, a professor of biochemistry, has researched and published extensively on the multiple roles of vitamin D, including inhibition of the growth of malignant cells found in breast cancer. Her current findings on the vitamin D induced protein that inhibits breast cancer growth are published in a 2009 issue of The Journal of Biological Chemistry. Previous research had determined that increased serum levels of vitamin D are associated with an improved diagnosis in patients with breast cancer.
http://www.sciencedaily.com/releases/2009/02/090204172437.htm
I wonder if a serum vitamin D level should be a regular test for women.
Monday, June 1, 2009
Finally, some good news!
I will need radiation treatment for sure. I am meeting with the radiation oncologist on Monday and have a second opinion on Wednesday morning. If the lymph nodes are positive then I may need chemo but we won't know that until later.
Waiting for the Possibilities
Neither area shows cancer which means we go back to the original plan of taking out the cancer we know is in the right and using radiation to get rid of any cancer cells that could be remaining.
If the right breast shows more cancer and the left does not. Any additional cancer in the right breast translates into a right mastectomy. If they do a right mastectomy then I can elect to have a left as well. The doctors say this is the most aesthetically pleasing option but I can wait and do the left later if there is no cancer there.
I then must decide if I want immediate reconstruction which Corey and I decided would be best. There are two schools of thoughts on this - one is wait about a year to allow time for grief and the other is to get the whole thing done at once. If I have to have a mastectomy then I want to put this behind me. Our only disagreement in this area is that Corey thought I should get a D - cup and I wanted an A - Cup. We compromised on a B-Cup.
If both sides show cancer then I must have a double mastectomy. One scenario we did not talk about is what would happen if the left showed cancer but the right was negative.
I will have the pathology back tomorrow and post again then.